Unusual Kids Born with Super Unique Conditions (2023)

Introduction

Coming up are some extremely unusual kids born with super unique conditions.
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- [Narrator] Childhood should be a time of innocent joy, when the grownups get to deal with the big stuff for you.

But.

Some kids have to deal with challenges beyond their years.

Life can be an uphill battle for anyone born different.

But their unique conditions are what make these kids so inspirational.

Grab, the tissues.

This is gonna be a tear-jerker.

(upbeat, music), Abby and Erin, Delaney., Whether, they're, identical or not, twins are linked by more than meets.

The eye.

But in some rare instances like that of Abby and Erin Delaney, they're, also connected, physically., These, beautiful, conjoined twins were born with a condition called craniopagus.

Meaning.

The tops of their heads were fused, together.

Conjoined twins like this usually begin as a single fertilized egg.

But if the egg partially splits or divides and then joins back together, it develops into two conjoined, fetuses.

It occurs.

Once in every 50,000 to 100,000 births, but less than 2% of cases are joined at the head.

Abby and Erin didn't just share the top of their skull.

They also shared an important brain vein called the sagittal sinus.

This meant separation was going to be risky, but after an 11-hour surgery and plenty of treatment, they pulled through.

Today they're, two, very happy, very bright and very separate little girls., Mahendra, Ahirwar., Do you ever wish.

You could see the world through someone else's eyes? Well.

If you had swapped perspectives with Mahendra Ahirwar, your world would have been turned upside.

Down.

Mahendra was an incredible young boy who suffered from congenital myopathy.

It's, a muscle disorder.

He was born with, which left the muscles in his body, thin, weak and terribly underdeveloped.

Congenital.

Myopathy affects approximately one in 25,000 people.

It may not be the rarest of conditions, but Mahendra suffered from an extreme variation.

The muscles in his neck were so weak that they didn't have the strength to lift his head, leaving it to hang at a 180 degree.

Angle.

The condition, also extended to his arms and legs.

Meaning.

He couldn't walk.

Because.

He was heartbreakingly light.

Mahendras family had no choice.

But to transport him around in a basket.

To improve.

His quality of life, Mahendra was given surgery in 2016 to implant a small metal rod in his neck, which finally helped him see the world, the right way round.

But just eight months later.

He sadly passed away.

I, don't know about you, but I'm definitely looking at the world from a different angle right? Now.

It's stories like this that really bring a tear to your eye.

So.

If you're a fan of the feels, be sure to hit that like and subscribe button.

I, put out new videos every day covering the most amazing stories and facts from all over the world.

Now that I've, given you a chance to dry your eyes, let's get back to those incredible kids, shall we? Katie Renfroe.

We live in an age where it seems doctors know just about everything about the human body, unless you have Katie Renfroe's, mysterious, medical condition.

When.

Her mom was just six months pregnant with young Katie, doctors discovered she was going to be born with megalencephaly.

This is a disorder that causes overgrowth of the brain, making it much heavier than average.

But after she was born.

Katie began to display symptoms that aren't usually associated with the condition.

To.

This day, doctors can't explain why her face has grown so big, why she suffers from as many as 50 seizures a day or why she can't walk or talk.

To help manage the condition.

This little champion has undergone, many painful surgeries, from making her cheeks, tongue, and ear smaller, to brain surgery.

But, no matter how many tests the doctors run, nothing has brought them.

Any closer to a diagnosis., In, fact, it's so rare that doctors may end up naming the condition after Katie.

But.

They haven't given up hope just yet.

And neither has her incredibly loving family.

Virsaviya Borun, Goncharova., Some, people wear their hearts on their sleeve.

But 10-year-old Virsaviya Borun Goncharova wears hers on the outside of her chest.

She has a condition called Pentalogy of Cantrell, a congenital defect that can affect the development of the sternum, diaphragm, heart, or abdominal wall.

But Virsaviya was born with one of the most extreme forms of the condition called ectopia cordis, where her heart formed outside of her chest.

Walls.

It's left her heart, almost completely exposed and only covered by a thin layer of skin.

So thin, in fact, that you can even see her heart beating through it.

This condition is incredibly rare, and only affects around 5.5 in every one million live.

Births.

The condition is usually fatal, and just 5% of affected new-borns survive.

When ectopia cordis is thrown into the mix.

But Virsaviya has defied all odds, making her survival.

All the more amazing.

Unfortunately.

The complexity of Virsaviya's condition has led doctors to rule out any form of corrective surgery for now.

But that hasn't stopped this brave-hearted little girl from living her life to the fullest.

Adalia, Rose., How old.

Would you guess youtuber? Adalia Rose is in this video? While.

She may look wise beyond her years, she's, actually only 13 years, old.

Although.

She doesn't sound it, just listen to her voice., You, see, Adalia suffers from progeria, a unique genetic condition that causes her body to age rapidly., So rapidly, that it's estimated progeria patients, biologically age about 10 years in a single year.

What.

This means is that while children like Adalia look normal at birth.

They develop aged looking skin.

They don't grow much in size, and their arteries, harden prematurely.

It's, this hardening and narrowing of the arteries that gives kids like Adalia.

A top end, life expectancy of just 21 years, old.

Even, though she has the body of a woman far beyond her years, Adalia enjoys things.

Most kids her age do; like gaming, recording TikToks and getting her nails.

Done.

You, go girl., Zoe, Lush., Parents joke about wrapping their kids up in bubble wrap to stop them from coming to harm.

But in Zoe Lush's case that wouldn't be such a bad, idea., You, see, Zoe suffers from osteogenesis imperfecta type, three, a genetic disorder, characterized by increased bone fragility, low bone mass and susceptibility to bone fractures.

It makes her little body so fragile that the slightest jar can cause a break, almost like she's made of glass.

Simple activities, like walking or standing, require specialist frames and equipment like this.

Even when she was still in the womb, doctors could see multiple fractures throughout her tiny, unborn body.

Although.

The prevalence of osteogenesis imperfecta is estimated between one in 10,000 to 20,000 births, it's unknown.

How many are classed as type three.

Can, you imagine what it must be like to have that many breaks and fractures at such a young age? Just thinking about it makes my bones hurt.

But.

The fact that little Zoe can still smile through all the pain makes this kid, a real superhero.

Abby and Brittney Hensel.

Do.

You have siblings that you have to share everything with? It can be such a pain.

But.

Do you think you'd be able to share a body with your sibling? It may sound like a joke, but for dicephalic parapagus, conjoined, twins.

There isn't a punchline., These, absolutely amazing.

Humans are fused side by side and are joined at the pelvis.

This means they often have two heads, but share one body, along with four to seven limbs, and most of their vital organs., Like, Abby and Brittney Hensel.

Born in 1990.

These sisters only had a one in 30 million chance of living beyond 24, hours.

It, all depended on how their organs were combined within their tiny, body.

They have two hearts, two spines, two sets of lungs and more obviously.

Two heads.

It was this separate development of their upper bodies that helped them pull through.

And since then.

They've been enjoying life with double the fun.

They, each control their own side of the body, meaning they have to co-operate and co-ordinate on just about everything from walking to drinking.

But.

They take tests separately, have different interests, and even different driving licenses.

If.

They get pulled over when they're driving, who do you think gets the ticket? It's hard to imagine having to share your life so intimately with your sibling.

Have.

Any of you guys had unusual and inspiring childhoods, or know anyone who has? Maybe, you overcame something as a child, which made you who you are today.

If, you feel like sharing, why not let me know in the comments below and I might even get back to those who inspire me the most.

Zhao, Huikang., In, 2009, Yi Lianxi gave birth to a baby boy in China's Hunan, Province.

But for hours after the birth.

She had to beg doctors to let her see her son.

And when they eventually showed her, her whole body, went numb.

Zhao Huikang had been born with a bilateral transverse facial cleft, which meant the front of his skull hadn't managed to fuse together.

This left him with two large gaps, spanning from his mouth to his ears, making it look like.

He was wearing a mask.

Transverse facial clefts like Huikang's have a prevalence that varies between one in 60,000 to one in 300,000 live births.

When.

His mother sought treatment for Huikang in 2010.

His story was heavily reported and managed to raise 400,000 yuan, around $60,000 at the time, in donations for life.

Changing surgery.

Huikang, underwent, two, successful operations.

And while the initial results looked promising.

His family was told it would take 10 years to see if his facial bones would grow normally.

But just take a look at the last images, recorded of Huikang from 2015.

The gaps on either side of his face are gone.

And even though there seems to be some slight deformity, he appears happy and healthy.

And at the end of the day, that's all that really matters.

Jaxon Buell.

It takes some serious willpower to be able to make it through life missing a part of your body.

And in the incredible case of Jaxon Buell, that couldn't be more true., You see.

This little hero was born with a severe brain abnormality called microhydranencephaly.

Meaning.

His brain stopped forming a few weeks into the pregnancy.

It's, an extremely rare hereditary condition that affects less than one in a million children at birth.

And sadly, there is no cure.

By.

The time Jaxon was born.

He was missing approximately 80% of the brain.

He should have had.

Doctors initially told his parents that he probably wouldn't be able to see, hear or talk, as the areas of the brain controlling those processes were thought to be missing.

But against those odds, Jaxon was able to do all those things, albeit in a limited capacity.

It seems those parts of his brain were there.

Just on a much smaller scale.

While.

He enjoyed a happy life full of love and support, Jaxon.

Sadly, passed away in early 2020 at just five years, old., But incredibly.

He managed to defy his doctors, every step of the way, what a little fighter.

Baby, Chanco., In, 2017, baby, Chanco, from Japan, was born with one incredibly unusual feature, a full head of hair.

By, four months old.

It had grown into a hilariously unruly quiff.

And by six months old, where most babies are still sprouting their first curls, Chanco's, parents were having to give their baby regular haircuts to keep her miraculous mane in check.

Her, glorious head of hair took the internet by storm, amassing her over 340,000 Instagram followers as well as her very own commercial for Pantene hair, products.

And, all by the time she was one year.

Old.

Kind of makes you re-evaluate your own life.

Achievements, doesn't, it?, If, only I'd used more conditioner in my youth.

But, all lamenting aside.

How on earth did Chanco end up with such luscious, locks? Apart from genetics, the exact influences of baby hair before.

And after birth is still a slight mystery.

Although.

One study from 2006 found an unexpected link between the severity of a mothers heart burn during pregnancy.

And the amount of hair her baby was born with.

I wonder, how many antacids Baby Chanco's mom needed before her adorable, furball, arrived?, Victoria, Komada., The, biggest challenge.

Most kids face.

These days is keeping up with the latest TikTok trends, but four-year-old Victoria Komada has far bigger fish to fry.

Thanks to her one-in-a-million.

Deformity.

She had bilateral, tibial, hemimelia, a condition.

So severely affecting her lower limbs that both of her legs were bent.

Backwards.

Expensive surgery was the only way to help save at least one of her legs.

And after raising $234,000, her miracle treatment gave her the ability to walk for the very first time., The, first, nine-hour operation, inserted a series of pins into her left leg.

Whilst amputating, the right above the knee.

Her.

Second surgery, fused the bones in her left leg together to help strengthen it, and finally, Victoria was able to take her first steps., With, a prosthetic leg, attached.

The youngster can now walk, run and play.

Thanks to the life.

Changing surgery.

There's, certainly, no turning back now for this little champion!, Milagros, Cerron., Can, you guess what the condition? Sirenomelia, involves?, No idea.

What if I called it by its less science-y, name, Mermaid, Syndrome.

This condition is an extremely rare congenital disorder characterized by anomalies in the lower spine and legs.

It causes them to partially or fully fuse together, giving the appearance of a mermaid.

Tail.

It only occurs in about one in 60,000 to 100,000 births.

And one of those was Milagros Cerron.

She was born in Peru back in 2004.

And as you can see, she was delivered with her legs, completely fused from hip to ankle.

What's more.

She only had one fully formed kidney.

Although, many babies with the condition die in the five days after their birth, Milagros, amazingly, survived., She, underwent many surgeries to separate her legs.

And from there she went from strength to strength.

She began to walk and dance, living a happy life like any little girl, should., But, her chronic kidney problems led to her tragic passing in 2019.

While, many babies suffering from Sirenomelia don't survive.

Beyond 48 hours, Milagros was given 15 incredible years of life.

But.

This little mermaid has finally become a little angel.

Rahma.

Haruna.

Rahma Haruna was just like any other happy and bright young teenager.

But she had an extraordinary background of strength and grit that stemmed from a mysterious medical condition.

Rahma was born in Kano, Nigeria.

And at just six months, old, her arms and legs stopped developing properly, leaving her almost completely limbless.

She never learned how to crawl or walk.

And as her head outgrew her baby-sized body, she couldn't even sit herself upright., The only way she could balance herself was by living in a plastic bowl, which propped her into a position where she could eat, see and be carried around.

Despite, her family selling almost everything.

They had to afford medical help, Rahma's condition, baffled the local doctors.

Because.

Her family were stricken by poverty, Rahma.

And her brother Fahad would beg for alms on the streets of Nigeria.

And they used the plastic bowl to transport her around.

Sometimes.

They even placed the bowl on a wheelchair [JJ188]donated to the family, to give her more mobility., But, her severe disability.

Didn't stop Rahma from dreaming of one day, starting her own grocery business.

Tragically.

Her dreams never became a reality.

And she passed away at just 19 years old in 2016.

I hope that one day we'll hear of a grocery store opened in her memory., Hong Hong.

It may sound far more common than you'd expect.

But one in every 700 to 1000 babies in the world are born with extra digits.

The condition is called polydactyly.

And in many cases, it's, just one or two extra fingers or toes.

But.

One extraordinary child called Hong Hong, from China, was born with a grand total of 31 developed digits.

That's, right, his hands and feet were made up of 15 fingers and 16 toes.

In.

Some cases, polydactyly can manifest as tiny bumps or firm pieces of tissue that doctors amusingly refer to as nubbins.

But there's nubbin wrong with Hong Hong's, fully formed fingers and toes.

It's incredible to see just how perfect.

They are.

Interestingly.

Hong, Hong's, mom also has polydactyly, as you can see by her.

Twelve fingers.

The condition is one of the most common hereditary limb anomalies.

So it's, not entirely surprising little Hong Hong has more than the average number of piggy's to take to market.

Do.

You know of anyone who was born with extra digits on their hands, feet or both?, Fu Wengui., When, viewed head-on, Fu Wengui appears to be a normal adolescent boy.

But from a different angle, it's, pretty clear that something's, not quite right.

At.

The age of just six years old.

He was diagnosed with congenital scoliosis, a spinal deformity, which is caused by abnormally formed vertebrae that affect the curvature of the spine.

Sadly.

This condition is prevalent in one in 10,000 new-borns and doesn't become apparent until their adolescent years.

When Fu reached 15 years of age.

It became clear that his vertebrae hadn't just curved.

They'd also added a few inches to his neck.

According to his father, Fu had 10 vertebrae in his neck, rather than the usual.

Seven.

The.

Pain, stemming from this condition was immense and caused poor Fu.

A whole variety of mobility issues., Fortunately, doctors from Chaoyang Hospital were able to formulate a surgical plan to help reduce the length of his neck., There haven't been any updates since this was announced.

So let's, keep our fingers crossed that Fu's neck reduction was a success, although there are probably a few situations where that extra length could come in handy., Tiyo, Satrio., Fighting spirit, isn't, just something you acquire, it's.

Something you're born with.

Don't believe, me?, Then, just ask Tiyo, Satrio., Despite, having no limbs whatsoever, Tiyo from West.

Java, Indonesia, has learned how to write and even play games on his PlayStation.

How does he manage that?, I can't even play? One handed, let alone no-handed.

Using, his chin.

And part of his shoulder, Tiyo can easily hit up a combo on the controller.

And by using his mouth to grip, his pen.

He can write so fast that he keeps up with his classmates at school.

But.

It wasn't always games and good news.

Tiyo's, mother, Mimi wasn't told about her son's condition until the day after he was born.

Even, though it shocked her at first.

She has learned to adjust to Tiyo's unique condition, helping give him the very best life.

She can.

Although it's helped him thrive.

He does still need help getting around, bathing, and putting on clothes.

But don't worry.

Those are three things that most Playstation gamers struggle, with.

Which of these.

Incredible kids have inspired you.

The most? And.

Do you know of anyone living with unique conditions? Just like them? Let, me know in the comments below, and thanks for watching! (upbeat music).